OntoCaimer: Hacia un modelo ontológico de apoyo al cuidado de pacientes con enfermedad de Alzheimer
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Resumen
La Organización Mundial de la Salud declaró en el 2021 al Alzheimer y su cuidado como prioridad de salud pública a nivel mundial debido a su complejidad y desarrollo, que afecta al paciente y su cuidador. Los síntomas del Alzheimer empeoran día a día, por lo que el paciente debe tener un cuidado 24/7; entre las responsabilidades, el cuidador debe lidiar con arduas tareas, desde bañar al paciente hasta manejar sus síntomas comportamentales. A pesar de la profusa información acerca del Alzheimer y su cuidado, no se cuenta con una fuente concisa de información que permita desarrollar sistemas integrados que soporten el cuidado de pacientes con Alzheimer. En este artículo se presenta OntoCaimer, una ontología que sintetiza las recomendaciones y acciones preventivas para la gran mayoría de los síntomas de las diferentes etapas del Alzheimer, asimismo, OntoCaimer integra conceptos relacionados con sensores, actuadores y medición, haciendo posible su uso como base para el desarrollo de sistemas que apoyen el cuidado de los pacientes, de manera digital –a través de alertas–, o con el uso de actuadores, todo con el fin de dar soporte al cuidado de los pacientes. OntoCaimer permite automatizar un grupo de variables asociadas a las recomendaciones o acciones preventivas como el: peso, ambiente, horarios de alimentación, entre otros, lo que permitiría apoyar el cuidado del paciente, disminuir las tareas del cuidador y servir como base de conocimiento para la comunidad científica y el desarrollo de sistemas que implementen sistemas electrónicos o simulaciones antes de su implementación.
Palabras clave
actuadores, alzheimer, apoyo al cuidado, cuidado, ontología, sensores
Referencias
- OMS, Demencia, 2023. https://www.who.int
- OMS, El mundo no está abordando el reto de la demencia, 2021. https://bit.ly/3DmKLtx
- MinSalud, Boletín de salud mental Demencia, 2017. https://bit.ly/31r2miY
- A. Tavares, C. Freitas, "The Burden of Informal Caregivers of Alzheimer’s Patients: An Estimation to Portugal," Evaluation of Health Services, vol. 1, no. 1, pp. 1-11, 2019.
- E. Jaul, J. Barron, “Age-Related Diseases and Clinical and Public Health Implications for the 85 Years Old and Over Population,” Front Public Health, vol. 5, pp. 1-7, 2017.
- Alzheimer’s Foundation of America, Resources for Alzheimer’s and Dementia Caregivers, 2022. https://bit.ly/3DJlPhr
- National Institute on Aging, Caring for a Person With Late-Stage Alzheimer’s Disease, 2021. https://bit.ly/3FK35zZ
- Alzheimer’s Society, Caring for a person with dementia, a practical guide, 2022. https://bit.ly/3Du7BQm
- Alzheimer’s Association, Family Care Guide: A guide for families caring for someone with Alzheimer’s disease or a related dementia, 2022. https://bit.ly/3gKJogH
- Alzheimer Society of Canada, Delusions and hallucinations, 2013. https://bit.ly/3U31Lfc
- Homewatch CareGivers, About Home Care, 2022. https://bit.ly/37NaG1R
- Help For Alzheimers Families, Your Questions Answered Archives, 2013. https://bit.ly/37MTMjY
- Alzheimer’s Association, Dementia Care Practice Recommendations for Professionals Working in a Home Setting, 2009. https://bit.ly/39uOJFy
- J. Luna, M.Bonilla, I. Torres, “Metodologías y métodos para la construcción de ontologías,” Scientia et Technica, vol. 2, no. 50, pp. 133-140, 2012.
- J. Li et al., “Development and Evaluation of ADCareOnto - an Ontology for Personalized Home Care for Persons with Alzheimer’s Disease,” in IEEE International Conference on E-health Networking, Application & Services, 2021, pp. 1–6.
- X. Liang, Y. Kong, G. Peng, “Online Medical Platform Oriented Identification of User Needs Related to Alzheimer’s Disease and Ontology Construction,” in International Conference on Human-Computer Interaction, 2021, pp. 316–330.
- S. Rashmi, S. Suha, R. Krishnan, D. Ramesh, “Alzh-care: - Knowledge - driven intelligent system to assist Alzheimer Patients,” ICATIECE, vol. 1, pp. 114–120, 2019.
- S. D. Machado, J. E. Tavares, M. G. Martins, J. L. Barbosa, G. V. Gonzalez, V. R. Leithardt, “Ambient Intelligence Based on IoT for Assisting People with Alzheimer’s Disease Through Context Histories,” Electronics Journal, vol. 10, no. 11, pp. 1-19, 2021.
- R. Hendawi, J. Li, S. Alian, “ADDietCoach: A Personalized Virtual Diet Coach for Alzheimer’s Disease,” International Journal of E-Health and Medical Communications, vol. 12, no. 6, pp. 1–18, 2021.
- J. Li, B. Maharjan, B. Xie, C. Tao, “A Personalized Voice-Based Diet Assistant for Caregivers of Alzheimer Disease and Related Dementias: System Development and Validation,” Journal of Medical Internet Research, vol. 22, no. 9, pp. 1-10, 2020.
- M. Fernandez, A. Gómez, N. Juristo, “Methontology: From Ontological Art Towards Ontological Engineering,” AAAI Conference on Artificial Intelligence, vol.11, no. 1, pp. 33-40,1997.
- D. Jones, T. Bench-Capon, P. Visser, Methodologies for Ontology development, University of Liverpool, June., pp. 1-14, 1998.
- M. Debellis, A Practical Guide to Building OWL Ontologies Using Protégé 5.5 and Plugins, 2019. https://bit.ly/3RQ4XLj
- DailyCaring, Tips and Help for Caregivers, 2014. https://dailycaring.com
- National Institute on Aging, National Institute on Aging, 2022. https://www.nia.nih.gov/node
- Help For Alzheimers Families, Guidance. Resources. Community, 2022. https://bit.ly/3WicvIO
- Family Caregiver Alliance, Family Caregiver Alliance, 2022. https://www.caregiver.org/
- Alzheimer Society of Canada, Alzheimer Society of Canada, 2022. http://alzheimer.ca/en/home
- Alzheimer’s Disease and Dementia, Alzheimer’s Association national site, 2022. https://alz.org/inicio
- Alzheimer’s Foundation of America, Alzheimer’s Foundation of America, 2022. https://alzfdn.org/
- Alzheimer’s Society, Alzheimer’s Society, 2022. https://www.alzheimers.org.uk
- Hired Hands Homecare, Hired Hands Homecare, 2021. https://bit.ly/3DJ2Fbp
- Homewatch CareGivers, Homewatch CareGivers, 2022. https://bit.ly/3NhdPau
- Elder, Live-in Care, Elderly Home Care and Dementia Care, 2008. https://www.elder.org/
- K. Janowicz, A. Haller, S. Cox, D. Le-Phuoc, M. Lefrançois, “SOSA: A lightweight ontology for sensors, observations, samples, and actuators,” Journal of Web Semantics, vol. 56, pp. 1–10, 2019.
- Alzheimer’s Disease and Dementia, Stages of Alzheimer’s, 2022. https://alz.org/alzheimers-dementia/stages
- Hopkins Medicine, Stages of Alzheimer’s Disease, 2021. https://bit.ly/3NxjPfH
- Mayo Clinic, Qué saber sobre las etapas de la enfermedad de Alzheimer, 2022. https://mayocl.in/3Ndv1fW
- The World Wide Web Consortium, Semantic Sensor Network Ontology, 2017. https://bit.ly/3SRbl3M
- A. Farquhar, R. Fikes, J. Rice, “The Ontolingua Server: a tool for collaborative ontology construction,” International Journal of Human-Computer Studies, vol. 46, no. 6, pp. 707-727, 1997.
- Y. Sure, J. Angele, S. Staab, “OntoEdit: Guiding Ontology Development by Methodology and Inferencing,” in OTM Confederated International Conferences "On the Move to Meaningful Internet System", 2002, pp. 1205-1222.
- M. Uschold, M. Grüninger, “Ontologies: Principles, methods and applications,” The Knowledge Engineering Review, vol. 11, no. 2, pp. 93-136, 1996.